Amy's Journey with...

Hypermobile Ehlers-Danlos syndrome (hEDS) ~ Postural Orthostatic Tachycardia Syndrome (POTS) ~ Focal Impaired Awareness (Complex Partial) Seizures ~ Fibromyalgia ~ Chronic Myofascial Pain (CMP) ~ Polycystic Ovarian Syndrome (PCOS) ~ TMJ Dysfunction ~ Bipolar Disorder Type I Rapid Cycling ~ Migraines ~ Gastroesophageal Reflux Disease (GERD) ~ Obsessive Compulsive Disorder (OCD) ~ Keratosis Pilaris (KP) ~ Complex-Post-Traumatic Stress Disorder (C-PTSD) ~ Panic Disorder ~ Generalized Anxiety Disorder (GAD) ~ Social Anxiety Disorder (SAD) ~ Nonsuicidal Self-Injury (Self-Harm) ~ Piezogenic Pedal Papules ~ Hashimoto's Thyroiditis ~ Irritable Bowel Syndrome (IBS) ~ Seasonal Affective Disorder (SAD) ~ Specific Phobias ~ Chronic Headaches

Friday, April 27, 2012

Health Activist Writer’s Month Challenge Day #27

5 Challenges. 5 Small Victories. Make a list of the 5 most difficult parts of your health focus. Make
another top 5 list for the little, good things (small victories) that keep you going.

Most difficult parts of having EDS:
1.  Being stuck home all the time.
2.  People making stupid comments like "I wish I could stay at home all day!"  Do you wish you were disabled, too?
3.  The uncertainty of when a joint will do something nasty.
4.  The incredible, unrelenting pain.
5.  The bone-weary fatigue.

Good things that keep me going:
1.  I've never had a cavity.
2.  My cats. Enough said.
3.  I have a shiny red walker that just screams "cool!"
4.  I'm learning to do more crafts and doing more of what I already know.
5.  My pink teddy bear, Eliza, that DH got me for our first Valentine's Day together.

Eliza, my teddy bear from DH

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