Amy's Journey with...

Hypermobile Ehlers-Danlos syndrome (hEDS) ~ Postural Orthostatic Tachycardia Syndrome (POTS) ~ Focal Impaired Awareness (Complex Partial) Seizures ~ Fibromyalgia ~ Chronic Myofascial Pain (CMP) ~ Polycystic Ovarian Syndrome (PCOS) ~ TMJ Dysfunction ~ Bipolar Disorder Type I Rapid Cycling ~ Migraines ~ Gastroesophageal Reflux Disease (GERD) ~ Obsessive Compulsive Disorder (OCD) ~ Keratosis Pilaris (KP) ~ Complex-Post-Traumatic Stress Disorder (C-PTSD) ~ Panic Disorder ~ Generalized Anxiety Disorder (GAD) ~ Social Anxiety Disorder (SAD) ~ Nonsuicidal Self-Injury (Self-Harm) ~ Piezogenic Pedal Papules ~ Hashimoto's Thyroiditis ~ Irritable Bowel Syndrome (IBS) ~ Seasonal Affective Disorder (SAD) ~ Specific Phobias ~ Chronic Headaches

Thursday, April 5, 2012

Health Activist Writer’s Month Challenge Day #5

Ekphrasis Post. Go to and write a post inspired by the image. Can you link it to your
health focus? Don’t forget to post the image!

This picture reminds me of the loneliness so many of us with EDS feel, especially those of us who are not believed or who are housebound.  I am housebound and sometimes I feel very lonely.  Without DH, the kitties, my best friend Nessa, my pen pals, and the internet I'd lose my mind.  When you feel really lonely it makes you depressed, and the woman in the picture looks depressed and lonely to me.

She seems to be holding a mask, which reminds me of what so many of us EDSers,  and spoonies in general, feel.  We have to put on a happy mask even when we are in extreme pain, because if we acted like we are in the pain we're in no one would want to be around us.  That's another thing I love about EDSers.  We can talk about pain and EDS with each other without judgement, or at least that is supposed to be the way it is.

This picture looks very sad to me.  It reminds me of fear, loneliness, depression, and wearing a mask.

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