Amy's Journey with...

Hypermobile Ehlers-Danlos syndrome (hEDS) ~ Postural Orthostatic Tachycardia Syndrome (POTS) ~ Focal Impaired Awareness (Complex Partial) Seizures ~ Fibromyalgia ~ Chronic Myofascial Pain (CMP) ~ Polycystic Ovarian Syndrome (PCOS) ~ TMJ Dysfunction ~ Bipolar Disorder Type I ~ Migraines ~ Obsessive Compulsive Disorder ~ Keratosis Pilaris (KP) ~ Complex-Post-Traumatic Stress Disorder (C-PTSD) ~ Panic Disorder ~ Generalized Anxiety Disorder (GAD) ~ Social Anxiety Disorder (SAD) ~ Non-suicidal Self-Injury (NSSI or SI) ~ Painful Piezogenic Pedal Papules ~ Hashimoto's Thyroiditis ~ Irritable Bowel Syndrome (IBS) ~ Seasonal Affective Disorder (SAD) ~ Multiple Phobias ~ Chronic Headaches

Wednesday, April 18, 2012

Health Activist Writer’s Month Challenge Day #18

Open a Book. Choose a book and open it to a random page and point to a phrase. Use that phrase to get
you writing today. Free write for 15-20 without stopping.

"I understand no one is above the rules..." ~ from Rolling Stone magazine

This makes me think of going to a doctor appointment.  If you ask for a doctor to treat you, to run tests, to basically do anything except say "there's nothing I can do," then they act like you are trying to put yourself above the rules.  I have a very poor opinion of doctors, as most doctors will not research anything for their patient, and if they do it's only to read one or two pages, at the maximum.  Doctors tend to pass you off on other doctors, and those doctors pass you off on other doctors, until you find yourself stuck in an endless circle of doctors, but not getting any help.  Most doctors, when it comes to a rare disease, could actually learn from WebMD, which is written for patients.  That is sad!  Of the doctor's I've had, and being an EDSer, I've had a lot, I can count on one hand the doctors that gave a crap about me.



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