Amy's Journey with...

Hypermobile Ehlers-Danlos syndrome (hEDS) ~ Postural Orthostatic Tachycardia Syndrome (POTS) ~ Focal Impaired Awareness Seizures (Complex Partial Seizures) ~ Fibromyalgia ~ Chronic Myofascial Pain (CMP) ~ Polycystic Ovarian Syndrome (PCOS) ~ TMJ Dysfunction ~ Bipolar Disorder Type I ~ Migraines ~ Obsessive Compulsive Disorder ~ Keratosis Pilaris (KP) ~ Complex-Post-Traumatic Stress Disorder (C-PTSD) ~ Panic Disorder ~ Generalized Anxiety Disorder (GAD) ~ Social Anxiety Disorder (SAD) ~ Non-suicidal Self-Injury (NSSI or SI) ~ Painful Piezogenic Pedal Papules ~ Hashimoto's Thyroiditis (Autoimmune Hypothyroidism) ~ Irritable Bowel Syndrome (IBS) ~ Seasonal Affective Disorder (SAD) ~ Multiple Phobias ~ Chronic Headaches

Sunday, August 14, 2011

Neck pain again, again, again...

Well, I did it, I talked to DH about the possibility of something else being wrong.  Right now I'm in a lot of pain in my neck.  I think that about describes EDS-a pain in the neck!  My neck pain causes constant headaches, or maybe the constant headaches are caused from something else.  I don't know.  Either way, I'm in pain and I don't like it.  My teeth hurt on good days, as do my eye sockets, ears, back of head (especially), forehead, cheeks, and shoulders from the neck pain.  On bad days I can't move my had from side to side and I can only lift my head off the pillow for very short periods of time, i.e. to roll over in bed.  The pain is in my upper neck and the bottom of my skull.


DH is afraid for something else to be wrong with me.  He hasn't looked at my Chiari page, but he feels that I don't have it.  I have no idea one way or the other for sure, I mean I'm not a doctor.  I just think something is wrong with my neck and/or something Chiari or Chiari-like is going on.  That is just my opinion, though.  I obviously don't know for sure on anything. Perhaps the symptoms I have are normal for people with EDS and fibro.  I just honestly think something is wrong, especially with my neck.  It could be something really simple in my neck, but either way I'd like it looked at and hopefully told how to fix it (that hopefully does not involve anything horrible like surgery).

I want to work on my cross-stitch, and I might get it out in a little while, but I don't know if I can do it with neck pain like this.  I still have to unload the washer.  The stuff in the dryer should  be dry.  This damn dryer you have to dry something over and over again.  And to make a long story short, I bought it off my rapist from years ago because I didn't recognize him at the time (it had been years).  The dryer doesn't work well, but at least it eventually dries.  I hang up on the clothes rack half of every load so what goes into the dryer isn't as much.  Right now my head just hurts too bad to do it.  Yesterday and the day before my headache almost reached a migraine level of pain.  At least my headache isn't quite that bad now.  It still freakin' hurts a lot though!

Today is my wonderful sister's birthday.  She is 27 years old and I love her very much and miss her.  She is currently stuck in an abusive situation that she refuses to leave.  She refuses all contact with me, but I plan on sending a happy birthday text to her from my email (the one she already knows about).  I contact her every few months and tell her I love her very much.  I hope that someday she can leave the abusive situation and be happy.  Today, though, is about celebrating her birthday.  So happy birthday, to my sister!

My sister and me in 1984



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