Amy's Journey with...

Hypermobile Ehlers-Danlos syndrome (hEDS) ~ Postural Orthostatic Tachycardia Syndrome (POTS) ~ Focal Impaired Awareness Seizures (Complex Partial Seizures) ~ Fibromyalgia ~ Chronic Myofascial Pain (CMP) ~ Polycystic Ovarian Syndrome (PCOS) ~ TMJ Dysfunction ~ Bipolar Disorder Type I ~ Migraines ~ Obsessive Compulsive Disorder ~ Keratosis Pilaris (KP) ~ Complex-Post-Traumatic Stress Disorder (C-PTSD) ~ Panic Disorder ~ Generalized Anxiety Disorder (GAD) ~ Social Anxiety Disorder (SAD) ~ Non-suicidal Self-Injury (NSSI or SI) ~ Painful Piezogenic Pedal Papules ~ Hashimoto's Thyroiditis (Autoimmune Hypothyroidism) ~ Irritable Bowel Syndrome (IBS) ~ Seasonal Affective Disorder (SAD) ~ Multiple Phobias ~ Chronic Headaches

Thursday, May 5, 2011

Jumping a hurdle tomorrow & a week of increased pain

I woke up in a lot of pain yesterday and today.  My pain is getting worse everyday and I've only been out of physical therapy a week.  I hurt so bad I can barely move, so I can't do my physical therapy exercises I'm used to doing.  This makes my pain worse and increases my weakness.  To top it off this evening I had a seizure last night and my shoulders certainly feel like I subluxed them both during the seizure.  I also hurt my wrists and my elbows during the seizure, especially my left wrist.

I see my cardiologist Friday for my follow up.  She will give me the results, that I'm sure are normal, of my echocardiogram and my Tilt Table Test (TTT).  I was supposed to have my follow up a long time ago but because of pain, money problems, and car problems, I haven't been able to make the trip.  I will finally be making it there and getting the results of my test.

I have these weird nail problems lately, and I don't know if they can be related to something related to the cardiology system.  My fingernails have turned into fan shapes and my nails curve down once they reach the white part.  I don't know what the deal is.

My weird fingernails

After I see my cardiologist I want to sit down and have a talk with DH about looking for a neurologist with regards to possible Chiari.  I don't know what DH will be thinking in his head and I'm a little worried.  Will he be scared?  Maybe, I hope not, but probably.  If I am honest, then I'd have to say I'm scared, too.  Will he be dismissive?  Never.  DH never dismisses my feelings.  I want to be able to explain it to him, my symptoms and so forth, and then we can make a decision from there on what we want to do next.  All that has to come after the cardiologist, though.  One thing at a time, one thing at a time.

I've been drinking fresh ginger tea all day yesterday and it helps with the pain.  I am going to ask DH to make me some more soon.  Right now I wish I was unconscious, even though I still feel pain in my sleep.  I really hope this increased pain is over by the time I leave Friday for my cardiologist.  

9 comments:

  1. I'm sorry to hear that you're experiencing all these symptoms. I googled "curved nails" and found this site.

    I, too, have the same issue .. did anyone ever give you an explanation?

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  2. I also found this site from googling curvy nails. My nails have grown this way for as long as I can remember. Did you find out what is causing it?

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  3. I think that it may be a vitamin deficiency. I started back on my vitamins and extra Vitamin D, since I'm chronically low, and they are getting better. It's improving slowly, but at least it is improving! :-) Hope that helps.

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  4. I recently started having the same problem with the curved nails, which i never had before in my 36 years... wonder if it is somehow related to our multiple like conditions??!

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  5. I recently started having the same issue with my nails. Things that make you go hmmmm....

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  6. I am 27 and this has started just recently for me.

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  7. My looks the some way. I have EDS classic type:)

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  8. Also came here after searching for curved nails. I only used to have the curve on my right pointer, and now it is on both my pointers and middle fingers on each hand. It's so ugly and prevents me from keeping any real length in my nails. I started having this problem a couple years ago.

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  9. I am 18 years old and I also have curved nails, they've been like this for almost 1 year. I started taking vitamin D and B-12 supplement since I have a slight deficiency and I started using a nail hardener and nail keratin treatment. They're becoming better but you can still notice them, it started in my pointers and now in most of my fingers in both hands (slightly worse in my right hand though)

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