Amy's Journey with...

Hypermobile Ehlers-Danlos syndrome (hEDS) ~ Postural Orthostatic Tachycardia Syndrome (POTS) ~ Focal Impaired Awareness (Complex Partial) Seizures ~ Fibromyalgia ~ Chronic Myofascial Pain (CMP) ~ Polycystic Ovarian Syndrome (PCOS) ~ TMJ Dysfunction ~ Bipolar Disorder Type I Rapid Cycling ~ Migraines ~ Gastroesophageal Reflux Disease (GERD) ~ Obsessive Compulsive Disorder (OCD) ~ Keratosis Pilaris (KP) ~ Complex-Post-Traumatic Stress Disorder (C-PTSD) ~ Panic Disorder ~ Generalized Anxiety Disorder (GAD) ~ Social Anxiety Disorder (SAD) ~ Nonsuicidal Self-Injury (Self-Harm) ~ Piezogenic Pedal Papules ~ Hashimoto's Thyroiditis ~ Irritable Bowel Syndrome (IBS) ~ Seasonal Affective Disorder (SAD) ~ Specific Phobias ~ Chronic Headaches

Saturday, May 31, 2014

EDS Awareness Month: Ehlers-Danlos Syndrome Resources

The following are excellent sources to learn more about Ehlers-Danlos Syndrome.

Ehlers-Danlos National Foundation (EDNF) -- one of my favorite EDS charity and website

Ehlers-Danlos Syndrome Network C.A.R.E.S. Inc. -- another great EDS charity and website

National Organization of Rare Diseases' (NORD)'s page on EDS

Hypermobility Syndrome Association (HMSA) -- from the UK (for the hypermobility type)

Genetics of Ehlers-Danlos Syndrome on Medscape Research

Myths and Facts about EDS

Medline Plus page on EDS

Ehlers-Danlos Syndrome on Medicine Net

Wikipedia's Page on Ehlers-Danlos Syndrome

Website on EDS with lots of pictures

Typical facial features of someone with the vascular type of EDS

Urgent information on vascular EDS

I hope these help!  Are there any other websites on EDS that you'd like to add?

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