Amy's Journey with...

Hypermobile Ehlers-Danlos syndrome (hEDS) ~ Postural Orthostatic Tachycardia Syndrome (POTS) ~ Focal Impaired Awareness Seizures (Complex Partial Seizures) ~ Fibromyalgia ~ Chronic Myofascial Pain (CMP) ~ Polycystic Ovarian Syndrome (PCOS) ~ TMJ Dysfunction ~ Bipolar Disorder Type I ~ Migraines ~ Obsessive Compulsive Disorder ~ Keratosis Pilaris (KP) ~ Complex-Post-Traumatic Stress Disorder (C-PTSD) ~ Panic Disorder ~ Generalized Anxiety Disorder (GAD) ~ Social Anxiety Disorder (SAD) ~ Non-suicidal Self-Injury (NSSI or SI) ~ Painful Piezogenic Pedal Papules ~ Hashimoto's Thyroiditis (Autoimmune Hypothyroidism) ~ Irritable Bowel Syndrome (IBS) ~ Seasonal Affective Disorder (SAD) ~ Multiple Phobias ~ Chronic Headaches

Saturday, May 31, 2014

EDS Awareness Month: Ehlers-Danlos Syndrome Resources

The following are excellent sources to learn more about Ehlers-Danlos Syndrome.

Ehlers-Danlos National Foundation (EDNF) -- one of my favorite EDS charity and website
http://www.ednf.org/

Ehlers-Danlos Syndrome Network C.A.R.E.S. Inc. -- another great EDS charity and website
http://www.ehlersdanlosnetwork.org/

National Organization of Rare Diseases' (NORD)'s page on EDS
http://www.rarediseases.org/rare-disease-information/rare-diseases/byID/240/viewAbstract

Hypermobility Syndrome Association (HMSA) -- from the UK (for the hypermobility type)
http://www.hypermobility.org/

Genetics of Ehlers-Danlos Syndrome on Medscape Research
http://emedicine.medscape.com/article/943567-overview

Myths and Facts about EDS
http://www.ehlersdanlosnetwork.org/myths-facts.html

Medline Plus page on EDS
http://www.nlm.nih.gov/medlineplus/ency/article/001468.htm

Ehlers-Danlos Syndrome on Medicine Net
http://www.medicinenet.com/ehlers-danlos_syndrome/article.htm

Wikipedia's Page on Ehlers-Danlos Syndrome
http://en.wikipedia.org/wiki/Ehlers%E2%80%93Danlos_syndrome

Website on EDS with lots of pictures
http://morphopedics.wikidot.com/ehlers-danlos-syndrome

Typical facial features of someone with the vascular type of EDS
http://images.rheumatology.org/image_dir/album75686/md_07-23-0045.jpg

Urgent information on vascular EDS
http://4.bp.blogspot.com/-Xz2c-JT105g/TatqxhhJZzI/AAAAAAAAAmA/UBtiCg9IAxA/s1600/vascular_warning.jpg



I hope these help!  Are there any other websites on EDS that you'd like to add?

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