Amy's Journey with...

Hypermobile Ehlers-Danlos syndrome (hEDS) ~ Postural Orthostatic Tachycardia Syndrome (POTS) ~ Focal Impaired Awareness (Complex Partial) Seizures ~ Fibromyalgia ~ Chronic Myofascial Pain (CMP) ~ Polycystic Ovarian Syndrome (PCOS) ~ TMJ Dysfunction ~ Bipolar Disorder Type I Rapid Cycling ~ Migraines ~ Gastroesophageal Reflux Disease (GERD) ~ Obsessive Compulsive Disorder (OCD) ~ Keratosis Pilaris (KP) ~ Complex-Post-Traumatic Stress Disorder (C-PTSD) ~ Panic Disorder ~ Generalized Anxiety Disorder (GAD) ~ Social Anxiety Disorder (SAD) ~ Nonsuicidal Self-Injury (Self-Harm) ~ Piezogenic Pedal Papules ~ Hashimoto's Thyroiditis ~ Irritable Bowel Syndrome (IBS) ~ Seasonal Affective Disorder (SAD) ~ Specific Phobias ~ Chronic Headaches

Tuesday, April 17, 2012

Health Activist Writer’s Month Challenge Day #17

Learned the Hard Way. What’s a lesson you learned the hard way? Write about it for 15 minutes today.

Woman on recumbent bike, a great exercise for EDSers
I learned the hard way that you should never stop exercising, even when it hurts.  I was warned of this by another EDSer, Sam, but I didn't listen, I guess.  The amount of time it takes your body to decondition is a lot faster than the amount of time it takes to get it back where it was.  It is also a lot harder, because when your body deconditions, your leg pain, fibromyalgia pain, and POTS all get worse.  When the muscles in your legs are strong, those feelings are supposed to go away.  That is my goal--to get to the point where standing up isn't a big deal, my fibro pain is less, and my leg pain is less.  Your legs hold up your whole body weight, so it is the worst place to be deconditioned, in my opinion.  Also, when you are deconditioned your fatigue is greatly increased.  I know that I really need to do something now, before it gets worse.

I hope someone can learn from my mistake and not end up like me. 

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