Amy's Journey with...

Hypermobile Ehlers-Danlos syndrome (hEDS) ~ Postural Orthostatic Tachycardia Syndrome (POTS) ~ Focal Impaired Awareness (Complex Partial) Seizures ~ Fibromyalgia ~ Chronic Myofascial Pain (CMP) ~ Polycystic Ovarian Syndrome (PCOS) ~ TMJ Dysfunction ~ Bipolar Disorder Type I Rapid Cycling ~ Migraines ~ Gastroesophageal Reflux Disease (GERD) ~ Obsessive Compulsive Disorder (OCD) ~ Keratosis Pilaris (KP) ~ Complex-Post-Traumatic Stress Disorder (C-PTSD) ~ Panic Disorder ~ Generalized Anxiety Disorder (GAD) ~ Social Anxiety Disorder (SAD) ~ Nonsuicidal Self-Injury (Self-Harm) ~ Piezogenic Pedal Papules ~ Hashimoto's Thyroiditis ~ Irritable Bowel Syndrome (IBS) ~ Seasonal Affective Disorder (SAD) ~ Specific Phobias ~ Chronic Headaches

Tuesday, April 10, 2012

Health Activist Writer’s Month Challenge Day #10

Dear 16-year-old-me. Write a letter to yourself at age 16. What would you tell yourself? What would you
make your younger self aware of?

Dear 16-year-old Amy,

You are more awesome than you think.  You are not crazy, what you are going through is called POTS, or Postural Orthostatic Tachycardia Syndrome.  It is caused by something else, called Ehlers-Danlos Syndrome.  EDS is going to impact your life more, and more, as you get older.  It is very important for you to be gentle to your body, but still exercise.  Thirty seems a long way off, but at age thirty you will be on a walker.  I want you to work as hard as you can at keeping strong, so that you can put the walker off by another ten years (at least).

No matter what the doctors say, there is something wrong with you, and it isn't in your head.  Please remember that.  You will run into a lot of same symptoms as you get older, most of them are from EDS or POTS.  You were recently diagnosed with fibromyalgia.  Your fibro also stems from your EDS.  You will have a lot to learn, but the sooner you get your diagnosis the sooner you can begin treatment.

Take care Amy, I love you.


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