Amy's Journey with...

Hypermobile Ehlers-Danlos syndrome (hEDS) ~ Postural Orthostatic Tachycardia Syndrome (POTS) ~ Focal Impaired Awareness (Complex Partial) Seizures ~ Fibromyalgia ~ Chronic Myofascial Pain (CMP) ~ Polycystic Ovarian Syndrome (PCOS) ~ TMJ Dysfunction ~ Bipolar Disorder Type I ~ Migraines ~ Obsessive Compulsive Disorder ~ Keratosis Pilaris (KP) ~ Complex-Post-Traumatic Stress Disorder (C-PTSD) ~ Panic Disorder ~ Generalized Anxiety Disorder (GAD) ~ Social Anxiety Disorder (SAD) ~ Non-suicidal Self-Injury (NSSI or SI) ~ Painful Piezogenic Pedal Papules ~ Hashimoto's Thyroiditis ~ Irritable Bowel Syndrome (IBS) ~ Seasonal Affective Disorder (SAD) ~ Multiple Phobias ~ Chronic Headaches

Saturday, April 10, 2010

Forecast for today...pain reaching far beyond the horizon

When I have a good day there is a small part of me that hopes there won't be any more bad days following it.  Then when the pain comes back full force I feel like I've been smacked in the face, though if you were to take that simile literally a slap in the face would be a tiny, tiny percentage of the pain.  I can't blog long tonight because it hurts to move my head, I've got a lot of pain in the vertebrae in my neck.

I don't want to be thought of as negative, but I don't think that I'll be lots better.  Yes, the geneticist told me to exercise.  He also told me to hire a personal trainer.  Mmm hmm.  I feel like screaming when I think of him.  I can't walk without a cane but I'm supposed to hire a personal trainer?  I don't have money for that even if I wasn't in debilitating pain.  I don't need a personal trainer, I need a physical therapist!

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