Amy's Journey with...

Hypermobile Ehlers-Danlos syndrome (hEDS) ~ Postural Orthostatic Tachycardia Syndrome (POTS) ~ Focal Impaired Awareness Seizures (Complex Partial Seizures) ~ Fibromyalgia ~ Chronic Myofascial Pain (CMP) ~ Polycystic Ovarian Syndrome (PCOS) ~ TMJ Dysfunction ~ Bipolar Disorder Type I ~ Migraines ~ Obsessive Compulsive Disorder ~ Keratosis Pilaris (KP) ~ Complex-Post-Traumatic Stress Disorder (C-PTSD) ~ Panic Disorder ~ Generalized Anxiety Disorder (GAD) ~ Social Anxiety Disorder (SAD) ~ Non-suicidal Self-Injury (NSSI or SI) ~ Painful Piezogenic Pedal Papules ~ Hashimoto's Thyroiditis (Autoimmune Hypothyroidism) ~ Irritable Bowel Syndrome (IBS) ~ Seasonal Affective Disorder (SAD) ~ Multiple Phobias ~ Chronic Headaches

Friday, April 2, 2010

When I fall apart do I duct tape or super glue?

Ah, I'm still having problems with my feet.  A bone in my left foot is dislocating.  Something as simple as rolling over in bed without letting my foot touch anything can dislocate the bone.  I joke about duct tape, but when band aids pull off skin and lead me bleeding I think that means I should only consider duct taping as a last resort.  I did buy some sport tape but I don't really know how to wrap my foot with hit.  I am going to look it up on Youtube.  I just don't know if I should give it a practice run when my foot isn't hurting.  Taping wrong and having to undo it doesn't sound fun right now.

I took a hot shower this evening that felt so good.  I have a chair I use to sit in while taking a shower.  It is a lawn chair, one of those folding types.  It is really comfortable and much better than my head swimming and holding onto the shower wall trying to balance while standing on no feet.  I still haven't figured out that feat yet.  Pun intended.  lol

I went to the doctor to get a referral to a cardiologist because I want to be checked for POTS and for Mitral Valve Prolapse.  I at least want a real doctor to take a history and run some tests.  My personality clashed in a major way with the physician I saw at the doctor's office.  I usually just see whoever I can get in with.  They all suck over there.  I asked for a cardiologist out of town.

I've been taking a lot of falls lately due to pain, foot dislocations, seizures, dizziness, and once, passing out.  So that isn't too cool.

I am trying to take things as they come.  Sometimes it is really difficult and sometimes it is not quite as difficult. Sigh.

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