tag:blogger.com,1999:blog-1529659871514661954.post8167081782673754968..comments2023-05-18T06:29:38.430-07:00Comments on Please Tape Me Back Together: EDS Babies IIIUnknownnoreply@blogger.comBlogger1125tag:blogger.com,1999:blog-1529659871514661954.post-73050836540116437682011-02-02T09:20:32.746-08:002011-02-02T09:20:32.746-08:00I thought I would share my pregnancy experience wi...I thought I would share my pregnancy experience with you. My diagnosis is for EDS 3 Hypermobility type, and although pregnancy issues are less common in this type, they are not unheard of, and I was one of the exceptions.<br /><br />I was pregnant with twins, and miscarried one of them at about 2.5 months. During the rest of my pregnancy I developed gestational diabetes, although I doubt that has any relation to EDS. About 3 weeks before my due date, I took a tumble in the middle of the night (typical EDS clumsiness) and ended up tearing my uterus and causing some fetal distress and a premature labor. Luckily my son was already a whopping 8 lbs 11 oz (they say he would have been an 11 pounder if I carried him full term!) and was hearty enough for the early delivery, although he was jaundiced at birth and had to be kept in the hospital for a few days.<br /><br />In addition to the problems with my pregnancy and delivery, my son has suffered health problems and I cannot help but wonder if EDS played a part. First of all, he has a high-functioning form of autism called Aspergers Syndrome. I have seen several sources discuss a link between autism and EDS. Second, he was diagnosed with Acute Lymphocytic Leukemia at age 2 (in long remission now at age 17). I've only found one document linking EDS to Leukemia (http://www.ncbi.nlm.nih.gov/pubmed/8923793), but it is definitely still worth mentioning. And lastly, my son DOES show signs of EDS, so it appears I have passed the gene on to him.<br /><br />I know this all sounds very negative... I isn't my intent to discourage you from having kids, because you sound like you would be a great mom! But I do want to caution you not to take your diagnosis of Hypermobility type lightly, both in terms of pregnancy complications and the genetics you might pass on to your child.Jettehttps://www.blogger.com/profile/16519340077181409815noreply@blogger.com