Toes. Yes, toes. I've been dislocating my toes on a daily basis. I tried sitting down for a serious talk with my toes, but you know how toes and their smart mouths can be. We didn't get anything done and they are still dislocating.
I even have to get up now in the night to put my toes back in. Wow. I feel like I'm Alice in Wonderland and I'm falling down a dark tunnel called "Life with EDS." There is nothing to grab onto and I keep falling in the deep dark abyss until the demon called EDS morphs me until all my joints will start dislocating. A year ago, just after being diagnosed with EDS, I listened to a YouTube video in which the "star" mentioned getting up all night to put dislocated joints back into place. I couldn't imagine my EDS ever being that bad, and I was pretty sure it wouldn 't be. Someone who dislocates large joints on a regular basis may find my blog entry about toe dislocations whiny and stupid. I am not being whiny though, I'm being scared. I don't know what to do. Can I inject my toes with super glue? I really think that would work for small joints. I don't care if I lose some mobility as long as I can keep the joint in place. I know it sounds silly, but I feel like I may be onto something. I am really, really scared and without my very best friend Vanessa I would have lost my mind by now. She doesn't realize how brave she is. I hope she will someday. I cannot express how scared I am without crying hard, as it is I'm crying already. What will happen to me? Will I start dislocating large joints? Can I stop it from happening? It seems everything I learn about EDS is bad stuff. I hate having EDS but, I try to look to the positive. I can say that I never would have met Vanessa and my other Twitter & FB friends otherwise and I think having EDS will make me stronger in the long run. I just don't feel very strong right now.
|Don't believe this smile, I bet these toes are as smart mouthed as mine!|